Beads of Courage Seattle Bead Challenge. Beads of Courage help Apollo track his journey with a congenital heart defect.

Beads of Courage Seattle Bead Challenge

Beads of Courage Seattle Bead Challenge

A few weeks ago Chuck and I packed up the troops and headed to Seattle to attend the Beads of Courage Seattle Bead Challenge.  Beads of Courage Seattle Bead Challenge. Beads of Courage help Apollo track his journey with a congenital heart defect.

Apollo has been a member of Beads of Courage since 2012. Beads of Courage offers a tangible way for kids to understand and tell about their medical journey. Each bead represents a different medical treatment the child has received.

Beads of Courage help Apollo tell his story of living with a congenital heart defect.

Everything from x-rays, to surgeries both big and small, to nights spent in the hospital are represented in these beads. Apollo has a rather impressive collection including seven silver stars representing the seven surgeries he has had.

Beads of Courage Seattle Bead Challenge. Beads of Courage help Apollo track his journey with a congenital heart defect.

Apollo loves his Beads of Courage and likes me to tell him what each one means. There are so many I often have to go back and check the chart to let him know which beads represent which procedures.

Chuck told me this was actually a really emotional event for him. He was struck by everything Apollo has gone through. Everything our family has gone through. He admitted to me that he had a hard time watching Apollo walk around with the beads around his neck.

Beads of Courage Seattle Bead Challenge. Beads of Courage help Apollo track his journey with a congenital heart defect.

The bead challenge was held at the  Seattle Glassblowing Studio. We were able to go into the studio and watch the artist make the glass beads. It was amazing to see how much time and effort is put into every single bead. Clearly, I have not been giving glass artists enough credit.

Beads of Courage Seattle Bead Challenge. Beads of Courage help Apollo track his journey with a congenital heart defect.

BTW, can I just say taking eight kids into a glass studio is a terrifying experience? Who needs a haunted house or childhood fears when you can take a bunch of kids who have just been sitting in a car for an hour and a half into a studio filled with fragile pieces of art that individually cost more than most of your children?

In other words, don’t do it unless you are as crazy as Chuck and I are.

Beads of Courage Seattle Bead Challenge. Beads of Courage help Apollo track his journey with a congenital heart defect.

The kids each got to design a “dream bead”. They came up with the design and color and the artists participating in the bead challenge created them. It was pretty cool!

Beads of Courage Seattle Bead Challenge. Beads of Courage help Apollo track his journey with a congenital heart defect.

Next, we headed to Gasworks Park in Seattle and had a picnic lunch. The kids really enjoyed this until Kid A found a pile of human feces and toilet paper and Kid B wasn’t allowed to keep the lighter he found in the woods…not far from the pile of feces.

Beads of Courage Seattle Bead Challenge. Beads of Courage help Apollo track his journey with a congenital heart defect.

So yeah, it was a pretty typicaadventure foror us.

Just another day in paradise.

 

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1 thought on “Beads of Courage Seattle Bead Challenge”

  1. Oh my goodness. That was the first thought I had, before I even read what you wrote, seeing the photo with the girls in the glass gallery. My kids are younger, but I’d just curl up and die of anxiety. You are either really crazy or really brave.

    And Apollo…so much suffering for such a small person. He is truly courageous.

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