Surgical G-Tube Removal {Seattle Children’s Hospital}

posted in: Apollo | 15

The night before Apollo’s surgical g-tube removal he was awake every single hour. While he didn’t verbally express any nervousness about the upcoming procedure I know the anxiety was just under the surface. I could see it in his restless sleep, his excessive chewing and his need to be close. His biggest question was, “will they give me sleep medicine?”  In his six-year-old mind, all that matters is that he sleeps through any procedures. 

Surgical g-tube removal at Seattle Children's Hospital.

Our check in wasn’t until noon so I was able to get Avi and Tucker on the bus before we left. His surgery was scheduled for 1:30 so Apollo was miserably hungry. At one point during our drive, he was crying and I said, “I know it’s hard to have to drive all the way to Seattle for surgery” and he replied, “I don’t mind driving all the way to Seattle for surgery. I just mind driving all the way to Seattle and not being able to eat!”

Going without eating is one of the hardest parts of having surgery for a kid.

Surgical g-tube removal at Seattle Children's Hospital.

I’m becoming a sucker in my old age. I told Apollo he could pick out a new stuffed animal when he had his surgery. And instead, I let him pick out two. Hey, you only have a seventh surgery once, right?

Surgical g-tube removal at Seattle Children's Hospital.

Surgical g-tube removal at Seattle Children's Hospital.

This is the first surgery Chuck hasn’t been there for. He struggled with the decision, but he is crazy busy at work, someone needs to pay the bills and this was a pretty minor procedure. So this time Kalina came along for the “fun”. 

In general, I hate it when people call Apollo brave. He didn’t choose to have a heart defect and fight it courageously. He was born this way and has been put through more medical procedures in his six years than Chuck, myself and all of our other kids combined. But yesterday? Yesterday he was indeed brave. 

Surgical g-tube removal at Seattle Children's Hospital.

When it was time for his surgery, he walked to the OR. I went with him, but he didn’t ask to be picked up or cling to me. In fact, he walked confidently three feet ahead of me and climbed right up on the operating table. If you have never watched your child be put under general anesthesia, consider yourself lucky. It is always hard (and a little scary) to see your child succumb to the anesthesia. 

If you have never watched your child be put under general anesthesia, consider yourself lucky. It is always hard (and a little scary) to see your child succumb to the anesthesia. 

Surgical g-tube removal at Seattle Children's Hospital.

Good-bye, g-tube! 

The hospital was insanely busy yesterday. So busy a different surgeon ended up doing the procedure. A nurse told me there is always a rush before the holidays. For those of you (like me) who like technical details here is how the g-tube removal went.

Surgical G-tube Removal

The doctor explained to me that they can’t just stitch up a hole (such as g-tube stoma) because it will just pull together in the middle and the sides will flare (think of a sideways number 8).

Instead, they cut around the hole until it is shaped like an oval and then stitch the skin together. He told me Apollo’s was more complicated than he expected because in addition to the granulation tissue on the top, he had a large knob of scar tissue on the bottom. He said initially he tried to “cheat” by just cutting through the middle of the scar tissue, but the knob of scarring it left was too big. He ended up going back and leaving a much larger incision than he planned for (though it doesn’t seem terribly big to me).

Apollo has four layers of stitches, all dissolvable. His stomach itself has stitches, then the muscle layer, the fat layer, and the skin layer. On top of that, he has glue (so no stitches are visible). 

The doctor said the biggest risks are infection and having the stomach stitches dissolve by stomach acids. Much to my surprise, he said there is still a risk of leaking from the stomach, even with surgical closure. He said the stomach has had an open sore for 4.5 years and the tissue can be weak. In addition, the stomach acids are designed to dissolve stuff. So, we wait and see.

This doctor told me two things (other than granulation and scar tissue) contribute to stomas not closing on their own. Number one is the length of time the tube has been in place (4.5 years is getting up there) and how skinny a patient is. The skinnier the patient, the less like the stoma is to close on its own, so it looks like a surgical closure was a good plan for Apollo.

Today Apollo isn’t in any pain but is very sore. Walking, rolling over and coughing, all bring him pain. We are camped out on the couch watching movies. It would be perfect if it weren’t for a certain hyper puppy who wants to play.

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15 Responses

  1. Get well soon Apollo…happy this part is over for you.

  2. Apollo does seem wonderfully brave to me! I keep thinking of books he might like . . . if he doesn’t already have them: the Flat Stanley series, The True Story of the Three Little Pigs (a good parody), Charlotte’s Web, A Bear Called Paddington, Henry Huggins, The Narnia books, Strega Nona . .. I could go on.

  3. Apollo looks so grown up in that last photo! I’m sorry he has to go through all this, but WELL DONE! Praying for good healing,

  4. I am amazed at how healthy he looks!

  5. […] tough to be Apollo. His recovery from his g-tube removal is not going as smoothly as I […]

  6. […] I was told the amount of pain to expect after the g-tube removal to be “tender like a bruise&#… In the next four days, Apollo had approximately two hours where he sat up and played with LEGO and colored. […]

  7. […] say it has been a rough twelve days since Apollo’s g-tube removal would be a massive understatement. I am happy to say he is now fever and pain-free and healing […]

  8. […] had his g-tube removed in November. He ended up with a terrible staph infection and it has just recently healed over. I […]

  9. […] in November six-year-old Apollo had his g-tube surgically removed and developed a nasty staph infection. The incision had to be surgically opened and drained. To […]

  10. […] The anniversary of the day he had his g-tube surgically removed. […]

  11. […] G-tube surgically removed. […]

  12. […] loves swimming shirtless now that his g-tube is out. ¬†We always had him wear a swim shirt to reduce the possibility that the tube got caught on […]

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