The weather here has taken a definite turn toward fall. I decided it was now or never to get new photos of Apollo with his Beads of Courage. Each bead has a different meaning and signifies a different medical treatment.
Yellow are for nights spent in the hospital. Blue are clinic visits. The white squares with hearts are for (you guessed it) heart surgery. He loves his beads and he loves for us to tell him what each on means. Seattle Children’s Hospital doesn’t participate in the Beads of Courage program so Apollo is enrolled in their Beads from a Distance program.
Thank you for all the comments regarding Apollo and possible sleep apnea. He has had a sleep study. It was done last April when he was admitted to Seattle Children’s Hospital for various tests. In my opinion the study was completely worthless. After hooking Apollo up to the dozens of wires and wrapping his head like a mummy (in addition to the pulse ox and IV he was already hooked up to) they expected him to fall asleep. It took literally hours for him to fall asleep. He then awoke crying so frequently that Chuck ended up spending the whole night sitting up in a rocking chair and holding Apollo in his arms.
The results? Apollo had borderline or mild sleep apnea, but nothing worth treating. Personally I thought it was ridiculous to come up with that after a night when he obviously never got into a deep sleep and certainly isn’t representative to a night’s sleep at home. I know he has apnea at times because I can hear him stop breathing. I don’t think there would be any way to keep him hooked up to a cpap machine at this age, anyway.
Regardless, he has an appointment with his pediatrician this afternoon and we will certainly be discussing his sleep.