Special Needs

Raising kids with special needs is hard than I ever imagined it would be. In 2002 and 2015 Chuck and I adopted babies with special needs. Both were drug and alcohol exposed. One would later be diagnosed with autism. In 2010 I gave birth to our youngest child, Apollo, who was born with a double aortic arch, a rare congenital heart defect. Come read my stories and share in our heartbreak and triumph as we raise children with special needs.

Double Aortic Arch Re-Operation {Texas Children’s Hospital}

A few people have, naturally, asked about Apollo’s symptoms and whether there has been improvement. Since this is our second time having this very operation done (with the exception of added complications this time) Chuck and are rather reluctant to get our hopes up.  When Apollo had this surgery done the first time, back in …

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Update on Apollo

(edited for clarification. The first version was written by Tilly) Apollo is still leaking cloudy/white fluid from his chest. The soy soy formula he is on has too much of the wrong fats. We tried feeding him some milk based formula, which he projectile vomited within ten minutes of being fed. Now the only options …

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