G-Tube Infection

Just a quick update. Apollo has been in a lot of pain since having his g-tube placed over a week ago. He was taking Tylenol every 4 hours day and night. He would have a couple of hours between doses when he felt well and played, but by 3.5 hours he was in pain. Wednesday he fell down outside and landed on his stomach…Thursday the area was red and oozing some white stuff…I called down to Children’s first thing Friday morning and they decided they needed to see him so we made an appointment for this afternoon.

By Saturday, the oozing was much more copious and turning yellow. And he was in a lot of pain. We decided waiting another 36 hours (until our Monday appointment) was not an option. After calling Children’s and talking to the GI doctor on call and our local doctor, we headed to the local ER.

The site is infected and we were sent home with antibiotics.

Sunday morning (after only one dose of antibiotics)  Apollo woke up feeling good…and wanted to walk up the stairs (he hasn’t walked up the stairs in months…between trouble breathing and low energy from lack of nutrients, he hasn’t wanted to tackle it). He had a great day yesterday and things look much better. In fact, I expect at today’s appointment they will look at the site and send us on our way.

So we’re making a day of it. The sun is shining. The skies are blue. And the zoo is only ten minutes from the hospital.

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17 thoughts on “G-Tube Infection”

  1. Oh, what a rough go of it you’ve all had! I’m glad to hear he’s feeling better, and pray that the appointment goes well. Have fun at the zoo!

  2. Praying you guys through your journey with Apollo. I’m glad he was better yesterday maybe things will go great today. Have fun at the zoo!

  3. Oh, that made me cringe! Poor little fella.

    How fantastic to hear Apollo wanted to tackle something he hasn’t done for months! Hoping for many many more of those kinds of updates. 🙂

  4. Ugghh! I hate G tubes for that reason..so hard to keep clean and heal properly etc…so glad you jumped on the antibiotics before got sepsis or something….have fun:)

  5. Emily from NZ

    Poor Apollo! I’m glad he’s feeling better now.
    Did he make it up the stairs?
    Because he’s not having to ‘eat’ does that mean he can focus more on breathing?

  6. Good job staying on top of it, it will heal and it wont keep getting infected as long as you follow the rules which of course I know you are… this part is hard, my mom has dealt with a lot of feeding tubes both in hospice and nursing home care. It is harder when it is a small child but it does heal, and it does get easier. He is going to grow so well I think, and remember this part. He wont remember this pain, I know he has a lot of anxiety and he may have some memories of something not so great but because you guys are getting him whatever help he needs I think he will heal completely from this. The mental aspect I mean, as an adult or older child we can remember what a broken leg felt like, or a cut, a car accident. Often children do not have firm memories before age 5 (naturally some have memories as early as 1 but it isnt super common) and so likely, the times that he had pain you were unable to control quickly will not be a memory for him. That (I think) is a small comfort! Does not make it ok that he has pain, that is never ok, or fair but you get it taken care of asap and he (likely) wont remember it. My daughter has some emotional problems due to deployments, but a lot of events are disappearing from her memory. If we do not bring them up, she doesnt remember the anxiety attacks or other problems. Maybe (praying) someday it will be as if it did not happen. She was 6 which is pretty old, but she does NOT have many memories from a time before age 7+. I think in this case, its God-send.

  7. Try to keep the sight as clean as possible. Did they show you how to clean around it? Did any of the docs tell you how long he would need it? Is there a goal weight gain or target that is trying to be met? Sorry for all the questions, I was just thinking, if they put it in for weight gain will he get it out at x amount of weight?

    1. bakersdozenandapolloxiv

      Yup, I clean it four times a day (per the instructions) when I feed him. No goal weight…it’s a matter of his esophagus straightening out as his body grows. The GI doctor indicated we were talking YEARS…it’s basically a matter of his anatomy rearranging itself, now that his esophagus is free of the aortic arch.

  8. Hi!
    I read your blog regularly, but generally don’t comment 🙂 I learned about an organization that provides (for free) children with stuffed animals that also have the same tubes that the child has. I thought I would pass along this information – it’s called Tubie Friends. They have a website with more information if it’s something you’re interested in for Apollo, or even the other children. http://www.tubiefriends.com/

    Seems like a good, cute idea.

    ~L

    1. bakersdozenandapolloxiv

      Lauren, Apollo has one! The organization went above and beyond getting Apollo his Tubie Friend before surgery. I will be blogging about it (and giving them a shout out) soon! Thank you.

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